When
Silas turned 2 years old, he had told his family that his name is
now BIG, he was no longer a baby and he was big enough
to adventure the world as a growing child. Everyone from the grocery
clerk to the preschool teacher knew his new name.
Silas
Nithaniel Luciano (known as Big) was like any 6 year
old active boy with no problems in sight. On September 2, 2000,
Big went on a trip to Florida with his mom and dad and three brothers.
We spent time at Disney World as well as on a 7 day Disney cruise.
He had a wonderful time and really enjoyed himself, little did we
know that this would be the last trip we would share as a family
with Big.
When
we returned from our trip, Big started the first grade. Big had
only been in school for two days when that evening he said he didnt
feel well. That night he awoke late complaining of too much pain.
We immediately took him to the hospital and they ran tests for two
days....
On
September 29, 2000, at the young age of 6, Big was diagnosed with
small round blue cell cancer/pancreatic blastoma at the Seattle
Childrens Hospital. This type of cancer has no known proven
treatment available. We were given only a few options, all of them
being very experimental and non that have been proven in anyway
to help. Big had become too weak and ill to undergo chemotherapy
and the pain was so bad, that morphine and codeine was the only
options that were left for us.
We
decided to extend his life using alternative medicine and see if
we could somehow lessen the pain without the heavy drugs. We took
Big to an alternative medicine hospital and spent his remaining
months there, by his side. The pain did disappear, and the small
6 year old was free of any strong medication. We had Halloween,
Christmas and New Years with Big, and every holiday was so special
to us. Big was not in school so the days went slow for him, but
his favorite moment of the day was when a visitor, or a package
or anything special would arrive for him. Every time Big received
something or someone, he always wanted to share and often asked
if everyone was as scared as he is.... and the answer was yes.
Big
left us on February 13, 2001, leaving the family with tremendous
loss and pain. Everyday that he lived, we had hope and he had gifts
of love and sharing. In my heart, I know that if Big has survived
and was still with us, he would give other children with cancer
all the gifts he received and he would go visit them and share with
them. I choose to carry out what Big did not have enough time to
do. Every gift, every dollar, every hug and every tear, I give for
Big and me. Big left me with the mission to help and I cant
let anyone forget this brave little boy and also there are so many
brave little boys and girls that everyone needs to reach out to
and offer their love and support. These children need us and I feel
as an adult and parent, if theres one thing I can do and its
as simple as a smile on a childs face, then I will go through
my life knowing that I did just that.
We
know what loss is and this foundation is set up for Big and for
all the children that he asked about and why they didnt have
the gift they ever imagined getting.... all the games that Big wanted
to play and all hope that he had that the other children have a
smile on their face. When we put a Big smile on a childs
face, thats a beautiful moment that the family and the child
can cherish.
Our
message to every parent is not to give up or loose hope!
Our
hope is that this web site will be a source of information, as well
as a source of inspiration to all of you who are touched by Big
Smiles on Small Faces! |